On Friday August 17 I was having a MRI done on my spine when twenty minutes into the test I began to shake uncontrolably. I have tested false positive(ELISA positive and two positive bands from the Western Blot),and have been with the symptoms of LD for six months.My pcp says that the test proves I do not have LD,and referred me to a neurologist for further evaluation.The neuro ordered the MRI. I had no problems when my pcp had me take a brain MRI in June,but this time I panicked and asked the MRI technician to remove me from the tube. I have been having frigthening body jerks for about two months.Can lyme disease trigger this kind of reaction during MRI testing? --
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Philip Guy wrote: > > On Friday August 17 I was having a MRI done on my spine when twenty > minutes into the test I began to shake uncontrolably. > > I have tested false positive(ELISA positive > and two positive bands from the Western > Blot), First of all, that is about 180 degrees from reality. One cannot test false positive by ELISA and then have 2 bands. One can be false negative to ELISA and have 2 bands. If someone is positive to ELISA and negative to Western Blot, with Lyme signs, it could either be Lyme (and the blot strips are shitty) or some other spirochete other than burgdorferi or some other infection or both. and have been with the symptoms of > LD for six months.My pcp says that the > test proves I do not have LD,and referred > me to a neurologist for further evaluation. Your PCP is a complete idiot. What's his number? I call him up and tell him for you (and everyone else he treats). The neuro ordered the MRI. > I had no problems when my pcp had me > take a brain MRI in June,but this time I > panicked and asked the MRI technician > to remove me from the tube. Eh, Lyme causes a Psychiatric Variety Show. This time it was a little panic disorder. > I have been having frigthening body jerks for about two months.Can lyme > disease > trigger this kind of reaction during MRI > testing? Lyme can cause myoclonic jerks. Don't worry about the MRI or the jerks. Just get to a Lyme literate MD asap. > --------------------------------------------------------------- > PG [Image] I am not single, I'm romantically challenged. > PHILIP GUY'S WEB PAGE Nice web page. K
Yes, I echo that, especially the parts about your PCP being ignorant and getitng yourself to a doctor who knows Lyme ASAP-
I totally agree with everything Kathleen and Sarah have said. For what it's worth, I had huge amount of shakes and jerks (especially triggered by stress and/or loud sounds) which have almost all resolved following Lyme treatment. PLEASE try to get to a Lyme Literate MD (LLMD). Yours sounds like a typically Lyme-ignorant one. If you need help locating one, we can help you find one. Just post "LLMD needed in ****" and fill in the blank with your area. Somebody will get back to you via private email because we don't post specific doc's names on the Internet to help protect our docs, who tend to get hassled by insurance companies and medical review boards for effectively treating Lyme. (that's a long story...but there is currently a huge controversy raging within the medical community over the ease with which Lyme is diagnosed and treated.) Best Wishes, Melody
Most doctors do not understand lyme testing and do not understand that lyme is a clinical diagnosis and cannot be ruled out because of test results alone. If you had a positive ELISA and have symptoms of lyme it's extremely, extremely likely you have lyme. Those body jerks are called myoclonus and can be caused by lyme. I've also had them worsen when getting MRI's - I don't know if it's the magnetism or the noise. Was the MRI with or without dye? Anyway, you really need to get to a lyme literate doctor as soon as possible. The best way to find one is to call the leader of the support group closest to you. You can find support group listings at www.lyme.org and www.lymenet.org Once you see an llmd he/she can refer you to a neurologist if necessary - it's pretty useless to see a neurologist without lyme experience and understanding. Feel better! Jenny
Jenny: Thanks for your concern. I have posted a request for LLMDs' names in my area(southeast Pennsylvania) at Lymenet, and received information about LLMDs and LD.The support group response has been great,and I would like to thank Joel,Larry, and SueH for their help. If you would like to view my posting go to Lymenet's Flash Discussion(Seeking a Doctor),and here I am "lymeorrhead" "Seeking LLMD". I have been given the big "blow off" by my PCP, and his referrals to a rheumatologist and a neurologist have gotten me nowhere.The support group people were correct when they told me that to see a LLMD asap is in my best interest.I am going to call a LLMD. --
I have had lyme for three years, and have not had any, and I did have an mri....but we are all different. Good luck.